raw diet and celiac disease

[RawJules]

Is anyone here familiar with celiac disease? I have a new nutritional client who suffers from celiac's disease. I understand what it is and all, but I haven't found anything that addresses the disease and the particulars of a raw food diet. So, I thought I'd ask you guys. Thanks for any info!!!!

Peace, Julie~

[Damzlfly]

I have it. I can't make any recipes using wheat berries. I havent tried anything else yet (rye berries etc). I got the same gluten reaction from the wheat berries. I heard that the soft one have less gluten, but they still triggered it...other than that, I have not had any problems.

[RawJules]

Damzfly,

Thank you for your reply. What about wheat grass juice? Or Nama Shoyu, have you tried either of these? Thanks again!
happiness to you,
Julie~

[Damzlfly]

I love wheat grass juice, as far as I know, there is no gluten in that. Nama shoyu does contain wheat so I use Braggs Amino's.

[RawJules]

Thank you so much!!!!

Julie~

[SchoolOfRAWk]

I thought celiac was more of a grain issue.

Aloe juice (lily of the valley is affordable and one of the few reputable brands) is great for healing the gut. :-)

[Tracy]

I, too, have celiac.

When you are a celiac you avoid all wheat and gluten.

So that means no wheat, oats, barley, rye, Nama Shoyu etc...

Tracy

[Damzlfly]

It really sucks. Can't have Alissa's rye bagels, all of the wheat based foods etc. Boo :mad: Oh well, my tummy is happier ;)

[barose]

I was never diagnosed (my doctor didnt want to order the tests), but I am definitely gluten intolerant. With raw, I rarely have to worry about it since its so easy to avoid gluten for the most part.

[dreamrawalwz]

My blood test was positive, yet the biopsy was negative. The major symptoms just started showing up so my theory is that it wasn't long enouch to cause physical damage the doctors could find and biopsy. I know I felt better without gluten and one day after 2 years gluten free had oats (assuming no gluten....dumb move!) and it was the WORST feeling ever. After that I have no doubt I am celiac.

I just avoid all grains, which is easy for me. I have no desire to have hte dehyrdated meals or breads or anything so I dont feel I'm missing anything. Namasoy (sp?) is not raw and it's soy that those are reason enough for me to avoid them. I've heard that wheat grass does not contain the gluten, but I think I'm intolerant or allergic to wheat itself as well.

[Pirawna]

I read the other week that wheat grass does not contain gluten because it is still a vegetable at that point and has not grown the gluten containing wheatberry yet.

And pure buckwheat is really gluten free also. The name scares many away, but its actually a seed that grows a weed and not related to wheat.

[barefoot&froliking]

I know this might be an old post, but I would love to reply (seeing as its new to me:-).

I was tested for food sensitivities when I was younger, which determined I am sensitive to wheat, eggs, dairy etc. I find I cannot eat wheat or any wheat associated grains (ie. spelt, rye etc), or I feel incredibly ill! But, I don't have an intolerance to oats. I'm wondering if anyone else experiences similar symptoms, because if not celiac, then what are we? :-)

[shannsu]

As far as the wheat issue goes, I know that the fiber in wheat is a lot more irritating to the susceptible gut than that of oats. It might explain your apparent lack of problems with oats.

As far as digestives disorders go, there are several (Crohn, IBS, IBD, celiac, etc.) with different symptoms and furthermore, each individual will have particularities. It also very much depends on how much abuse your body has taken. Having been diagnosed at a young age, and assuming this was taken into account in your food choices, then your system might still be in relatively good shape.

To have an exact diagnosis, to put a name on the illness (or issue) then a series of tests will most likely be the only way to know *for sure*. But hey! If you know this and that food make you feel bad, you just stay away from it. Maybe one day you'll have a clearer fix on the name. Having a coloscopy is no fun!!! Biopsies are not that hot either!

Take good care of your body. It's your only vehicle right now. If it breaks down, it's to the repair shop!!! No fun.

[barefoot&froliking]

thank you for your reply. I am 25 now, but I had very unhealthy eating habits during my childhood (I am even embarrassed to go into detail: the worst of the worst!:-). I have been following a vegan and mostly raw diet since I was 14, so hopefully I am on the mend. However, I do find I have digestive issues most of the time with regular foods (and I never seem to have an issue with fattier foods), and I am starting to wonder if it is from gallbladder surgery I had when I was 16. I was severely ill with gallstones for a year prior to the 'emergency' surgery, but just lately I find certain foods really bother me. If anyone has any insight, or has had similar experiences, it would be much appreciated:-)